“My name is Dylan. I have ataxic Cerebral Palsy. I have always had problems walking and impairment to my balance but the reason I now use a wheelchair is I developed tethered cord syndrome which is like spina bifida. When I was 9 weeks old I turned blue and passed out and my mom did CPR on me and because of this brain injury I could not run at all, or walk well and I can’t write or feed myself. When I could walk it was hard to walk on uneven ground which is related to CP and my Lyme disease. In Israel while preparing for Rabbinical school had to walk on uneven ground and I hit my head a lot. Due to my brain damage I have a lot of stomach issues and an exaggerated gag reflex as a result of CP so I throw up a lot. I gag even if my mouth is open too wide and because of my Ehlers Danlos Syndrome I dislocate my jaw. In CP we often take supplements of Vitamin B to help, I also have pernicious anemia which is a total lack of the ability to absorb vitamin B through my stomach so I take vitamin B as a shot. If I don’t have a vitamin B shot every month my CP symptoms will get worse and I can die without Vitamin B because the lack of vitamin B makes my blood acidic. An important fact of CP is that it can affect my voice. My spasticity from CP and co occurring dystonia it is hard to speak so I use A A C. We can’t talk about CP without discussing epilepsy which is common in CP. I have epilepsy and non epileptic seizures. A very common way to treat seizures is with medications that are also mood stabilizers. The medication slows the brain down so a person does not seizure. Depakote is a seizure drug that has saved my life. I still have non epileptic seizures but because of Depakote I don’t have to worry about dying in the middle of the night. There are other medications I use for CP such as Baclofen which is a muscle relaxant similar to botox used to treat spasticity. For my tremors and shaking I take Propranolol which helps me feel better but I still need help to feed myself and write. As a part of my Ehlers Danlos Syndrome my joints go everywhere so my CP spasticity is worse to try to hold my joints together. For more information on CP I implore you to go to the Crip Video Productions website. We make media content about disability rights, our current endeavor is the documentary “What The Body Believes”, and our founder Margot Cole has Cerebral Palsy. You can follow the work we do anywhere on social media. I am the producer and audio engineer for Crip Video Productions. “-Dylan Rothbein This is the speech our producer gave to medical billing students with AAC. To hire Dylan for public speaking see here https://dylanrothbein.weebly.com/
Crip Video Productions
Sunday, April 12, 2026
Medical billing speech
Friday, April 10, 2026
Medical billing presentation
“I spoke to a class of medical billing students. I gave a small presentation on Cerebral Palsy and genetic conditions. I presented to the class on medical terminology. I tried to add to the curriculum. Part of the class was translated between Russian and English languages. One student spoke Hebrew. I mentioned genetic bottle necks as it relates to rare genetic disease. I spoke on the link between gender dysphoria and EDS.”
-Dylan Rothbein
Dylan Rothbein gave a presentation on ataxic Cerebral Palsy to a medical billing class at a trade school today on behalf of Crip Video Productions. To see more of Dylan's presentations on the brain see here https://youtu.be/vDf3Gni0l1c?si=mB70WT2t9MPo19EM to hire Dylan Rothbein as a paid public speaker see Dylan Rothbein Liberty Coalition https://dylanrothbein.weebly.com/
Thursday, April 9, 2026
UK press
Crip Video Productions is getting press from CripLife https://criplife.co.uk/reclaiming-the-word-crip-disability-organisations-using-crip-with-pride/
Transition Tidbits
Margot Cole of Crip Video Productions featured in the April 2026 edition of PA Transition Tidbits, focused on Independent Living under "Meet Margot" section! https://app.smore.com/n/em1tc
Sunday, April 5, 2026
The Mystery Of The Frontal Lobe
https://youtu.be/vDf3Gni0l1c This is a video about the nervous system focusing on the frontal lobe of the human brain, showing the impact of traumatic brain injury on the frontal lobe.
This video highlights and mentions the Crip Video Productions film “Drama Sighted”.
#Epilepsy #Autism #CerebralPalsy
Monday, March 30, 2026
The Joys Of Cerebral Palsy
https://medium.com/@dylanrothbein/the-joys-of-cerebral-palsy-guest-post-by-margot-a84edf90e282
This is a new post for Cerebral Palsy Awareness Month 2026 about the reality of living with CP. Note: Names and identifying details have been changed for privacy, aside from names shown with full permission. Some details also appear on the Crip Video Productions website. Dylan Rothbein consulted on some aspects.
Friday, March 27, 2026
Cerebral Palsy Awareness 2026
March is CP Awareness Month, and at Crip Video Productions, we are leading with authentic disability representation. At Crip Video Productions, we believe CP Awareness is about more than just wearing a specific color. It's about seeing disabled people as they are—vibrant, and creative. We don’t just tell these stories; we live them, edit them, and direct them.For Cerebral Palsy Awareness Month, we want to shift the narrative and show people with CP living fully and creatively.Every single project we have ever produced has disabled crew members and characters. For us, CP Awareness isn't a hashtag—it's about centering disabled talent and celebrating life with Cerebral Palsy. Here’s some fun content about CP.
This post covers Cerebral Palsy and adoption https://medium.com/@dylanrothbein/a-cripples-approach-to-adoption-and-gratitude-guest-post-by-margot-987f065b9bb9
This video was made for Cerebral Palsy Awareness Month https://youtu.be/4VE3EgBQ0DU?si=phPtpUmZA5JgF7Fz This video was originally created in 2021 for a class Dylan Rothbein developed specifically to help parents of disabled children and people pursuing the field of special education to understand the developmental and neurological effects of Cerebral Palsy featuring filmmaker Margot Cole. If you would like to take one of Dylan Rothbein's classes see here https://dylanrothbein.weebly.com/classes.html To learn more about Cerebral Palsy see here https://cripvideoproductions.com/about.php @cripvideoproductions
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