Showing posts with label startle reflex. Show all posts
Showing posts with label startle reflex. Show all posts

Sunday, April 12, 2026

Medical billing speech

“My name is Dylan. I have ataxic Cerebral Palsy. I have always had problems walking and impairment to my balance but the reason I now use a wheelchair is I developed tethered cord syndrome which is like spina bifida. When I was 9 weeks old I turned blue and passed out and my mom did CPR on me and because of this brain injury I could not run at all, or walk well and I can’t write or feed myself. When I could walk it was hard to walk on uneven ground which is related to CP and my Lyme disease. In Israel while preparing for Rabbinical school had to walk on uneven ground and I hit my head a lot. Due to my brain damage I have a lot of stomach issues and an exaggerated gag reflex as a result of CP so I throw up a lot. I gag even if my mouth is open too wide and because of my Ehlers Danlos Syndrome I dislocate my jaw. In CP we often take supplements of Vitamin B to help, I also have pernicious anemia which is a total lack of the ability to absorb vitamin B through my stomach so I take vitamin B as a shot. If I don’t have a vitamin B shot every month my CP symptoms will get worse and I can die without Vitamin B because the lack of vitamin B makes my blood acidic. An important fact of CP is that it can affect my voice. My spasticity from CP and co occurring dystonia it is hard to speak so I use A A C. We can’t talk about CP without discussing epilepsy which is common in CP. I have epilepsy and non epileptic seizures. A very common way to treat seizures is with medications that are also mood stabilizers. The medication slows the brain down so a person does not seizure. Depakote is a seizure drug that has saved my life. I still have non epileptic seizures but because of Depakote I don’t have to worry about dying in the middle of the night. There are other medications I use for CP such as Baclofen which is a muscle relaxant similar to botox used to treat spasticity. For my tremors and shaking I take Propranolol which helps me feel better but I still need help to feed myself and write. As a part of my Ehlers Danlos Syndrome my joints go everywhere so my CP spasticity is worse to try to hold my joints together. For more information on CP I implore you to go to the Crip Video Productions website. We make media content about disability rights, our current endeavor is the documentary “What The Body Believes”, and our founder Margot Cole has Cerebral Palsy. You can follow the work we do anywhere on social media. I am the producer and audio engineer for Crip Video Productions. “
-Dylan Rothbein This is the speech our producer gave to medical billing students with AAC. To hire Dylan for public speaking see here https://dylanrothbein.weebly.com/

Sunday, July 2, 2023

Review by Dylan Rothbein for Disability Pride Month!

“Best Practices in Action by Dylan Rothbein When it comes to best practices in media and accessibility, which is my main concern with Dylan Rothbein Liberty Coalition, too many companies have decided to ignore disability or tokenizing disabled in their brand which is not accessibility or social model of disability. There is one company however that deserves to be celebrated for their leadership and best practices which is Crip Video Productions. Crip Video Productions has put out 4 short films which showcase disabled actors in their natural habitats and each actor get accommodations. Crip Video Productions follows the ADA to the letter which is a best practice. Crip Video Productions exists to make sure everyone has value from conception to natural death. Crip Video Productions has also partnered with many organizations like Students Unlimited at Kingsborough, Teatro Paraguas, and Dylan Rothbein Liberty Coalition, and embodies Nothing About Us Without Us because everyone has a disability or is an allay. I was hired by this company to produce “What The Body Believes” a collaboration between Crip Video Productions and CUNY. Crip Video Productions also conducts ethical business practices every day because our director makes sure everyone is compensated in some way. So many times disabled people are exploited but not at Crip Video Productions. This is why it is an honor to be affiliated with this company which is disability oriented, stands for free speech and free expression, and knows every life matters. Crip Video Productions excels and employs best practices at all stages, our director makes sure shoot locations are accessible so we can contribute our skills as human beings not just because we are disabled. In casting our casting director sees the potential in every actor regardless of experience because Crip Video Productions believes in opportunity and responsibility. In post production Crip Video Productions excels at audio description, with audio description on each production and screen reader access so I am honored to work there as a blind person and I know that no matter how impaired I get I will always have a place at Crip Video Productions. Crip Video Productions is a role model for the disabled because many disabled people feel like they can’t start a business but our director is also a writer and editor with Cerebral Palsy, which teaches us you can succeed with a TBI. ”
References Cole, Margot. “Crip Video Productions” 2023 www.cripvideoproductions.com “Dylan Rothbein Linkedin” 2023 https://www.linkedin.com/in/dylan-rothbein-a86140147 Cole, Margot. ”3 presentations in a single day!” Crip Video Productions 2020. https://cripvideoproductions.tumblr.com/post/190517942026/3-presentations-in-a-single-day “Students Unlimited” https://www.kbcc.cuny.edu/access-ability/contact.html “Teatro Paraguas” teatroparaguasnm.org This is a review of Crip Video Productions by Dylan Rothbein posted with permission. Dylan Rothbein is the producer on a new Crip Video Productions film project which is a collaboration. Happy Disability Pride Month/Disability History Month from Crip Video Productions! Dylan Rothbein Liberty Coalition is seperate from Crip Video Productions. Crip Video Productions is collaborating with PSC CUNY via generous donation on "What The Body Believes" co directed by Mary Lynn Navarro. I(Margot Cole) also wrote biology essays that combine biology with disability studies themes. This one covers Cerebral Palsy, the Moro Reflex, and neurodiversity. https://medium.com/@dylanrothbein/the-moro-reflex-guest-post-by-margot-3d9ccc4758b2 This essay was generously consulted on by Dylan Rothbein

Saturday, May 23, 2020

Comics and feedback

Mark Pauling, an actor from our film “A Stroke Of Endurance”  who plays a college student in Ava’s class in the film, is selling some awesome comic books on Ebay here https://www.ebay.com/usr/calamity_collectables Please check it out! Please note!: Crip Video Productions does NOT receive any monetary gain from the sale of the comics! Please contact them through Ebay for help if needed, NOT Crip Video Productions.
We got more feedback on our online video calls from viewers saying they felt empowered by the presentations. The viewers said they now have a more positive view of disability and did not realize Cerebral Palsy came with a very sensitive startle reflex. Some viewers said they had never met anyone with the spastic diplegia type of Cerebral Palsy before meeting us.
It’s also “Stroke Awareness Month” for our fans with strokes in May. Please share “A Stroke Of Endurance” with stroke survivors this month.